Think a friend or colleague should be getting this newsletter? Share this link with them to sign up. Good morning! This Fourth of July week kicked off with some announcements in the neurotech field.
A key capability of the registry is predicting the risk of adverse events during transcatheter-based procedures on pediatric patients.
In January 2025, SeaStar Medical was awarded the 2025 Corporate Innovator Award by the National Kidney Foundation for its significant contribution to improving the lives of pediatric patients with AKI ...
Having a full view of a patient’s health story through real-world data (RWD) and evidence (RWE) is the key to improving health outcomes and advancing treatment options. Yet, many historical challenges ...
Electronic health records (EHRs); insurance claims; patient registries; wearable tech: Never before has health data been so abundant. However, the United States continues to struggle with siloed ...
On Rare Disease Day, PKD Foundation, IQVIA Highlight Patient Registry Gathering Quality-of-Life Data
The Polycystic Kidney Disease Foundation and IQVIA are partners in the development of the ADPKD Registry, which is tracking longitudinal quality-of-life information from patients across North America.
US patients with chronic obstructive pulmonary disease (COPD) managed in primary care settings have high exacerbations, symptoms, and treatment burdens, according to an analysis of electronic health ...
Seqster, a San Diego-based healthcare company aiming to build comprehensive patient records, announced Tuesday that it is partnering with the National Pancreas Foundation (NPF) to create the nation’s ...
DANBURY, Conn., Nov. 14, 2025 /PRNewswire/ -- The National Organization for Rare Disorders (NORD®), a leading national nonprofit serving more than 30 million Americans with rare diseases, announces a ...
LONDON & CHICAGO--(BUSINESS WIRE)--Anova Enterprises, Inc. (Anova), an organization dedicated to accelerating promising treatments to market with its transformative AnovaOS™ technology platform, has ...
This post was updated Feb. 28 at 8:31 p.m. A UCLA registry is facilitating blood plasma donations from recovered COVID-19 patients and helping guide COVID-19 research. UCLA researchers opened the ...
The Alabama Medical Cannabis Commission is being sued by parents who say the commission has not created a patient registry to dispense medical cannabis as required by state law. Filed in Montgomery ...
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