Patient registries are evolving from static data repositories to become valuable sources of real world evidence (RWE), which is increasingly important to stakeholders across healthcare. This evolution ...

Think a friend or colleague should be getting this newsletter? Share this link with them to sign up. Good morning! This Fourth of July week kicked off with some announcements in the neurotech field.

Seqster, a San Diego-based healthcare company aiming to build comprehensive patient records, announced Tuesday that it is partnering with the National Pancreas Foundation (NPF) to create the nation’s ...

Having a full view of a patient’s health story through real-world data (RWD) and evidence (RWE) is the key to improving health outcomes and advancing treatment options. Yet, many historical challenges ...

The Polycystic Kidney Disease Foundation and IQVIA are partners in the development of the ADPKD Registry, which is tracking longitudinal quality-of-life information from patients across North America.

University of Iowa neuroscientists have launched a registry to track and study traumatic brain injury, a condition that affects 1.7 million Americans each year, including people hurt in various kinds ...

Please provide your email address to receive an email when new articles are posted on . After 1 year, more than 1,600 participants are a part of the Pulmonary Fibrosis Foundation’s Community Registry.

This post was updated Feb. 28 at 8:31 p.m. A UCLA registry is facilitating blood plasma donations from recovered COVID-19 patients and helping guide COVID-19 research. UCLA researchers opened the ...

Patients with multiple sclerosis (MS) who were receiving disease-modifying therapies were found to have rare occurrences of ...

The Danish National Patient Registries have emerged as an indispensable resource for epidemiological research and public health policy. These registries compile detailed, population‐wide information ...

Add Yahoo as a preferred source to see more of our stories on Google. Kim Lawn is interim executive director, Access and Affiliation with Health P.E.I. (Wayne Thibodeau/CBC - image credit) Health ...