IRISH Friedreich’s ataxia patients have criticised the latest delay in the reimbursement of Skyclarys. The life-saving drug ...

A person isn’t defined by their disability alone — we are whole people, with dreams, desires, feelings and goals’ ...

A young county Monaghan woman living with a debilitating and rare neuromuscular disorder has slammed Taoiseach Micheál Martin ...

People living with Friedreich's Ataxia have criticised the latest delay in the decision on whether to reimburse Skyclarys ...

Craig Coady from Cork is pleading for a new drug to be made available in Ireland to prolong his son Paudie's life - he has ...

Scientists discovered that a key brain signal may have been pointing researchers in the wrong direction, potentially changing ...

Levacetylleucine (Aqneursa) improved neurologic symptoms and functioning in adults and children with ataxia-telangiectasia in ...

Superficial siderosis (SS) is a rare, progressive neurological disorder with the most common symptoms being progressive sensorineural hearing loss, ataxia and myelopathy. We aim to report a rare case ...

Trump's speech at his Great American State Fair exposed signs of what a specialist is calling his "neurological decline." In a recent video, Hilary Shae, a licensed speech-language pathologist, ...

INESSS reassessment supports the therapeutic value of SKYCLARYS and advances the reimbursement pathway for eligible patients in Quebec. FA is a rare, progressive, and life-shortening neurodegenerative ...

Dyspraxia is a neurological disorder that makes it hard to plan and process motor tasks, often affecting coordination. It is usually diagnosed in early childhood, but symptoms can continue into ...

Sanofi has received a priority review from the FDA for its NDA for venglustat, an oral GCSi intended for the treatment of type 3 GD3.